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8月20日 These babies need your help!Hi Friends,
I'm not much into forwards and petitions and such, but this one hits close to home for us. CDH (the condition discussed below) is the condition Miles was born with and spent 81 days in the NICU with. We have been helped tremendously by the organization sending out this email. They do newsletters and an online chat and support area as well as sending out a survey to all new members to see if they can determine a common link among these babies. All this is done by volunteers (I am also an on-call volunteer for parents who discover they are having a CDH baby.). They do sell merchandise to try to raise support and awareness, but that is hardly their mission! If I guess correctly, the organization that wants the trademark has the website at www.cdhawareness.com. After checking out their site (which is very "pretty"), I don't see where they are doing their good. To me, just raising "awareness" helps none of these babies. Even if they are doing as much good as the CHERUBS site (the one I am involved with), it doesn't seem right that they should have a market on the awareness of this condition. Why would they need a trademark except with the intent to profit by it? This sounds like a desire for funds, not a desire for truly helping CDH babies.
Thanks for your consideration,
Hugs,
Kerrie
PS If you sign the petition, it takes you to a page that appears to insist that you donate money to the site facilitating the petition. You do not have to donate for your signature to count. Just close that page when you are done "signing".
----- Original Message -----
Sent: Tuesday, August 12, 2008 9:50 PM
Subject: "Congenital Diaphragmatic Hernia Awareness" may be trademarked - we need your help! Dear Members and Friends of CHERUBS,
I am asking a personal favor to please read this e-mail and forward it your friends and families in hopes to help us help CDH families as something very important has occurred that we should all be aware of.
An organization has filed a trademark application to own the phrase "Congenital Diaphragmatic Hernia Awareness".
This means that no one, no CDH family, no medical center, no other organization including CHERUBS would be able to use this phrase to raise awareness or help CDH babies while this organization would be sole owner to use awareness of this birth defect as a marketing tool. No one should own awareness of a birth defect that hurts 1600 babies a year in the U.S. and kills 800 of them. I cannot begin to express how detrimental this would be to the entire CDH community and our efforts to raise awareness, support and research for this devastating birth defect.. We are petitioning this with the U.S. Patent & Copyright office and need your help.
http://www.ipetitions.com/petition/cdhawareness/ Please sign this petition and forward this to family and friends. You can sign anonymously if you like and only I will see your name.
Thank you all so very, very much for your continued support of CHERUBS and families affected by Congenital Diaphragmatic Hernia.
Sincerely,
Dawn M. Torrence
President & Founder
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
270 Coley Rd, Henderson, NC 27537
(252) 492-6003
Miles 3-weeks old Miles today Divine Inspiration!For someone who wants organization and routine, but can't stand a schedule (because I never know what to do when I get off-schedule 30 minutes!), this is a divine inspiration: (This was in the Old Schoolhouse newsletter this morning as often quoted by Elisabeth Elliot. I don't know who the author is.)
Do The Next Thing
"At an old English parsonage down by the sea, there came in the twilight a message to me. Its quaint Saxon legend deeply engraven that, as it seems to me, teaching from heaven. And all through the hours the quiet words ring, like a low inspiration, 'Do the next thing.' Many a questioning, many a fear, many a doubt hath its quieting here. Moment by moment, let down from heaven, time, opportunity, guidance are given. Fear not tomorrow, child of the King, trust that with Jesus, do the next thing. Do it immediately, do it with prayer, do it reliantly, casting all care. Do it with reverence, tracing His hand, who placed it before thee with earnest command. Stayed on omnipotence, safe 'neath His wing, leave all resultings, do the next thing. Looking to Jesus, ever serener, working or suffering be thy demeanor, in His dear presence, the rest of His calm, the light of His countenance, be thy psalm. Do the next thing." Enjoy every minute! Gotta get to that next thiing!! Hugsy wugsy's - Kerrie Berrie
 8月19日 Struggles of LifeTherefore, since Christ has suffered in the flesh, arm yourselves also with the same purpose, because he who has suffered has ceased from sin, so as to live the rest of the time in the flesh no longer for the lusts of men, but for the will of God. - 1 Peter 4:1-2 God is good, but I have not completely graduated from the lesson he has me on yet. I am trying to find the balance between Miriam, who wanted to remove male leadership, and Bathsheba, who "did not stand up to sin and is guilty of not pleasing God and pleasing men." (to quote a letter from our former pastor's wife [meaning former pastor, not former wife], Donna Prosise) I have most often been in the camp with Bathsheba, but in recent days, I have felt the pull that Miriam did. The ultimate proof of a life that is God-pleasing instead of man-pleasing is one that is willing to suffer for what is right. The Bible even says that one will have ceased from sin by having a heart that is perpetually God-centered. I tell myself I am willing to suffer for Christ, but in truth, I am not usually willing to "suffer" at the hand of my husband. I tell myself I can excuse and forgive an unbeliever, but that Josh, as a Christian, has no excuse. I am not sure that I have yet to respond properly when I am "attacked" by Joshua with words or ways I feel are unloving. I am still believing the lie that he will be motivated to change by my disrespect and that my meekness would only encourage his "unloving" treatment. Help me to win this battle, Lord, one day and one word at a time. (See http://paigespages.spaces.live.com/blog/cns!684FB94140827047!1403.entry for a fellow-blogging friend's words of wisdom on this topic) I am also reading from Elisabeth Elliot's book "Discipline - A Glad Surrender" - not for the faint of heart - my ears feel boxed! Here are some gleanings from the chapter on discipling the body: "Pursue... the sanctification without which on one will see God." Hebrews 12:14 "Each of you must learn to gain mastery over his body, to hallow and honor it.... For God called us to holiness, not to impurity." - I Thess 4:4&7 More spiritual failure is due... to... the failure to recognize this living body as having anything to do with worship or holy sacrifice. This body is, quite simply, the starting place. Failure here is failure everywhere else. ... habits...must be broken if we are to be free for the Lord's service. We cannot give our hearts to God and keep our bodies for ourselves. ... This seems to me to indicate that few men who have not succeeded in curbing the appetite will make it to the top. Physical restraint is basic to power. They do it for this world, we do it for another. [my comment: When was the last (or first!) time I thought of exercise as means to more than just a temporal end?] ...It is a good thing to me, to learn to do with less. "You do not belong to yourselves. You were bought at a price. Then honor God in your body." - I Cor 6:20 It takes discipline to go to bed when you ought to and discipline to get up. My father had a ready answer for those who expressed incredulity at his "ability" to get up so early in the morning: "You have to start the night before." "Awake my soul, and with the sun Thy daily stage of duty run. Shake off dull sloth and joyful rise To pay thy morning sacrifice." - Thomas Ken "Joyful rise?" Not very realistic, is it? It does not come naturally for us. But it never did for anybody. Dull sloth is natural... so instead of dismissing the hymn writer as hopelessly outdated, might we not ask God for His help in being joyful makers of sacrifice?
I am reminding myself that, as E.E pointed out earlier in her book, discipline is not a drudgery, it is a glad surrender of my life to His will - His best for me. How can I not profit from that? On the subject of discipline, here are some pictures of Blake helping me discipline my body back to its pre-pregnancy state (well, hopefully!) Growing in Grace and Grateful for the Gift of Friends, Kerrie Misplaced AffectionsRalph Waldo Emerson once said, “A person will worship something, have no doubt about that. We may think our tribute is paid in secret in the dark recesses of our hearts, but it will out. That which dominates our imaginations and our thoughts will determine our lives, and our character. Therefore, it behooves us to be careful what we worship, for what we are worshipping we are becoming.” Eventually, what dominates our innermost thoughts and imaginations comes forth as that to which we give our allegiance and worship. Indeed, long before Emerson, Jesus warned similarly that “where our treasure is, there will our hearts be also” (Matthew 6:21). - from a devotional provided by Ravi Zacharias International Ministries |
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